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|b G484 2007
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| 245 |
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|a Genomics and public health :
|b legal and socio-ethical perspectives /
|c edited by Bartha Maria Knoppers.
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| 264 |
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1 |
|a Leiden ;
|a Boston :
|b Martinus Nijhoff,
|c [2007]
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| 264 |
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4 |
|c ©2007
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| 300 |
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|a xi, 329 pages :
|b illustrations ;
|c 25 cm
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| 336 |
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|a text
|b txt
|2 rdacontent
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| 337 |
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|a unmediated
|b n
|2 rdamedia
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| 338 |
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|a volume
|b nc
|2 rdacarrier
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| 504 |
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|a Includes bibliographical references.
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|a pt. I. Population screening : issues, realities and possibilities. Introduction : expansion of screening / J. Gerard Loeber ; Expansion of newborn screening : current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility : what's the harm? / Nikki Kerruish ; Newborn screening expansion : Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening : a clinical geneticist's view / Helena Kaariainen and Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction : newborn screening : storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research : revised biobank regulations / Bent Norgaard-Pedersen and David M. Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday -- pt. II. Balancing interests in public health genomics. Introduction : of genomics and public health : building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein and Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield and Nola M. Ries ; Challenges for public health genomics - the public health perspective on genome-based knowledge and technologies / Angela Brand -- pt. III. Genomics and public health : current approaches and future perspectives. Introduction : the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice : international policy implications / Stuart Hogarth ; GRaPH Int : an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue : an analysis of two projects / Hubert Doucet ... [et al.] ; Meeting of minds : a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics : engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin.
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|a Charney scanned
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| 650 |
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|a Genetic screening
|x Law and legislation.
|0 http://id.loc.gov/authorities/subjects/sh2003010545
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| 650 |
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|a Genomics.
|0 http://id.loc.gov/authorities/subjects/sh2002000809
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| 650 |
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|a Genomics
|x Moral and ethical aspects.
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| 650 |
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|a Public health.
|0 http://id.loc.gov/authorities/subjects/sh85108638
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| 650 |
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|a Genetic screening
|x Law and legislation.
|2 fast
|0 (OCoLC)fst00940095
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| 650 |
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|a Genetic screening.
|2 fast
|0 (OCoLC)fst00940094
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| 650 |
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|a Genomics.
|2 fast
|0 (OCoLC)fst00940228
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| 650 |
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7 |
|a Genomics
|x Moral and ethical aspects.
|2 fast
|0 (OCoLC)fst01983796
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| 650 |
|
7 |
|a Public health.
|2 fast
|0 (OCoLC)fst01082238
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| 700 |
1 |
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|a Knoppers, Bartha Maria.
|0 http://id.loc.gov/authorities/names/n84081135
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|a Santa Clara University
|b Santa Clara Main Campus
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